Educational
and Resource Links
For Children With Spastic
Hemiplegia (Hemiparesis) |
Ultraflex makes custom braces for the
physically disabled.
One
of those braces is specifically designed for children with Cerebral
Palsy induced spastic hemiplegia (hemiparesis). The treatment
progam is known as FirstFlex. To better understand
FirstFlex, view one of our brief
video clips.
The
valuable links on this page will help you learn more about children
with spastic hemiplegia (hemiparesis) and organizations that serve
them.
Local
News Story about FirstFlex
"To
be priced at about $2,000 the FirstFlex brace should rate
competitively with other common treatments for spasticity. . .
such treatments include injecting a poison into the muscle to
paralyze it so it can be retrained when it relaxes again, or surgically
cutting the muscles to let them lengthen."
Local
News Story
Hemi-Kids
"The
Hemi-Kids Foundation offers suport and information for families
of children who have hemiplegia or hemiparesis due to pediatric
stroke or other causes."
http://www.hemikids.org/
American
Academy for Cerebral Palsy and Developmental Medicine
"The
American Academy for Cerebral Palsy and Developmental Medicine
is a multidisciplinary scientific society devoted to the study
of cerebral palsy and other childhood onset disabilities, to promoting
professional education for the treatment and management of these
conditions, and to improving the quality of life for people with
these disabilities."
http://www.aacpdm.org
Christine
M. Kleinert Institute for Hand and Microsurgery
The
Kleinert Institue conducted two research studies on spastic hemiplegia
in children documenting marked improvements in reach, grasp and
pinch when following the dynamic/static bracing and NMES treatment
protocol.
http://www.cmki.org/
United
Cerebral Palsy
"As
one of the largest health charities in America, UCP's mission
is to advance the independence, productivity and full citizenship
of people with cerebral palsy and other disabilities, through
our commitment to the principles of independence, inclusion and
self-determination."
http://www.ucpa.org/
Exceptional
Parent Magazine
"Continuing
30 award winning years of providing information, support, ideas,
encouragement and outreach for parents and families of children
with disabilities and the professionals who work with them."
http://www.eparent.com/
Groups
for Cerebral Palsy
This
site provides links to online support groups made up of people
who are facing challenging life issues as individuals with Cerebral
Palsy. There are teen, parent, and adult groups. There are also
groups that chat about sports, love and other issues.
http://dir.groups.yahoo.com/dir/Cultures___Community/Groups/
http://groups.google.com/groups/
National
Institute of Neurological Disorders and Stroke
General
information about Cerebral Palsy. What is Cerebral Palsy? Is there
any treatment? What is the prognosis? What research is being done?
http://www.ninds.nih.gov/health_and_medical/disorders/cerebral_palsy.htm
United
States Cerebral Palsy Athletic Association
Our
overall purpose is designed to provide both individualized sports
training and competitive opportunities for athletes [athletes
not atheletes] with cerebral palsy, or other related challenges,
such as traumatic brain injuries or strokes.
http://www.uscpaa.org/
Cerebral Palsy Guide
"Cerebral Palsy Guide is an organization dedicated to the education and support of anyone affected by CP. Through their website, individuals can learn about different treatment and therapy options along with different forms of support that are available to those with CP."
http://www.cerebralpalsyguide.com/ |